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#MyalgicE

Growing through phases (phase 1)

Submitted by Aurora Christialis on Mon, 01/23/2023 - 21:18
The last few months I’ve been thinking a lot about how to design my new back garden. With the past couple of gardens, I confess, my plans were based on hope. I mean, all garden plans are, but mine were ...

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Including disabled people in politics

Submitted by Aurora Christialis on Mon, 02/07/2022 - 21:10
Updated 18th February 2022 Disabled people are often told we are needed in politics and should be more active, but the people saying this never consider what kind of accommodations might be needed to make it possible for us to ...

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Update 1: Using a heart rate monitor to better manage MECFS (including HRV)

Submitted by Aurora Christialis on Sun, 08/01/2021 - 19:32
In mid June, I talked about using a heart rate monitor to better manage MECFS. I thought it might be useful to post an update and let you know how it’s going. And I’m adding information about another useful measurement, ...

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